Heart of a Giant Foundation
At Heart of a Giant Foundation, we are committed to reducing the impact of heart disease worldwide. We strive to become the leading partner in detecting, diagnosing, and managing cardiac risk factors. Our multi-level intervention programs empower individuals to take control of their health. Join us now to impact communities affected by heart disease significantly.
Our vision is clear: to ensure that every individual in the community has access to effective heart health education, superior healthcare assistance, and community resources, enhancing their overall health, quality of life, and the management of their heart conditions and related risk factors. We strive to achieve this vision by:
Our mission is to proactively identify heart-related risk factors in at-risk population groups, provide them with the support and knowledge they need to become self-reliant, and advocate for managing and living with their health conditions.
Raising awareness about risk factors and symptoms of cardiac conditions;
Promoting regular health check-ups, screening, and early diagnosis;
Providing culturally intelligent and responsive services;
Improving patient-provider relationships;
Enabling access to improved care and better health outcomes;
Empowering patients and caregivers, and
Promoting advocacy and self-advocacy.
Heart disease remains the No. 1 cause of death both in the US and the World, with staggering statistics highlighting the urgency of our mission:
18 million+ lives are lost to heart disease globally each year.
655,000+ deaths occur in the US annually due to heart disease.
495,000+ individuals suffer from high blood pressure-related casualties every year.
Despite these alarming figures, only about 49% of Americans are aware of their heart health status, underscoring the critical need for increased education and awareness.
High blood pressure, also known as hypertension, is a common heart condition that has been identified by the US Centers for Disease Control and Prevention (CDC) as a leading risk factor for heart disease, stroke, kidney disease, and vascular dementia.
According to a recent study conducted by the Boston Public Health Commission, one out of every four adult residents in Boston reported having hypertension. The study also found that the percentage of hypertension was higher for Black (36%) and Latino (27%) adults compared to White adults (20%). Neighborhoods with predominantly Black people, such as Mattapan, Dorchester, or Roxbury, had hypertension rates ranging from 34% to 42%.
Eager to learn more about our efforts and impact? Visit our News and Insights Page. It's a space where we share blogs, insights, stories, and project updates. Our blog isn't just about posting articles; it's a platform for engagement. We love interacting with our readers in the comments section, fostering a community of like-minded individuals passionate about advancing the world of heart health.
Join us at Heart of a Giant Foundation as we work with our communities, supporters and partners to turn the tide against heart disease, one heart at a time.
Disclaimer:
The information shared on this page is not intended to replace professional medical advice. Always consult with a healthcare provider for any medical issues.
Hello friends, we're back after a period of quiet dedication and self-improvement. We've been busy working on ourselves and our foundation and are eager to share what we've been up to. The next few months will reveal why taking a hiatus was so worthwhile.
Health Update
I'm now approaching my 20th-month post-heart transplant, and I feel tremendous. The journey has been extraordinary, with the first and second years presenting vastly different experiences. I'm still in the process of fully embracing and integrating my new heart into my life. It's a unique sensation, like getting to know a new part of myself. My health has been remarkably good, and my body has responded well to the transplant, allowing me to recover swiftly and return to my family and work.
Regular follow-ups, from weekly to quarterly and even six-month intervals, have ensured everything is on track. My medical care has been exceptional, surpassing my expectations. My doctors have been incredibly committed, with one of them even referring to my progress as a "medical miracle." I'm extremely grateful for their support and expertise.
Personal Milestones
Last year, I celebrated my first transplant anniversary, which coincided with my first work anniversary in my current job, as I had started working just a couple of weeks before the transplant. Around the same time, my wife and I prepared for our wedding renewal, a beautiful celebration of our 10-year union. The event was filled with meaning and symbolism. I was overwhelmed with emotion as friends and family, including those who have known me since birth and watched my children grow, gathered to celebrate with us.
Before the celebration, I traveled back to Dakar and Bamako for the first time in seven and a half years. I visited family and caught up with longtime friends. While it was bittersweet that my mom couldn't be there in person due to her dialysis treatments abroad, I knew she was with us in spirit. The trip was an excellent opportunity to reconnect with friends and put the final touches on our wedding plans.
It was epic!!! See the short recaps here: Recap A - Bouba and Des and Recap B - Bouba and Des.
Let me know if you’d like to see the full videos.
Professional Growth
Now, almost two years after the transplant, I've been reflecting on my life and priorities. My dedication to healthcare innovation and community support remains strong, and I'm considering my next career steps and how best to balance personal growth and responsibilities. I've even taken a semi-sabbatical to rest and recharge, which was much needed after the intense period of post-transplant recovery.
As a leader, I've taken the time to reflect and refine my vision and mission personally and for the foundation. Our focus areas are well-defined, and we want to expand our impact. One of the ideas we're exploring is geographical expansion, directly or through partnerships with other organizations.
While there have been challenges along the way, we've managed to navigate them and remain healthy. I'm grateful for the support of my family, friends, and colleagues, and I'm excited about the future. We're looking forward to sharing more updates soon and continuing to make a positive impact through our work.
Foundation Updates
This year, we have taken the time to slow down and strategize for the future. We have completed a strategic plan, which the Board will soon review. The year's first half has been dedicated to planning our expansion, setting new objectives, crafting a strategic plan for 2025-2030, revising budgets, and improving our programs. Our early successes have given us a strong foundation, and we are now focused on solidifying our operations and strengthening our team. This plan outlines our goals and initiatives for the coming years. Our team has grown significantly from 6-7 nurses to 17+ Community Health Coaches, composed of physicians, registered and professional nurses, social workers, nutritionists, dietitians, dental hygienists, pharmacists, and psychiatrists. This diverse team allows us to offer a holistic approach to our services. We are excited to soon share important updates, including our systems and programs. We are also building on the success of the past years with our partner organizations and have compelling stories to share soon.
We have also revamped our website (https://heartofagiant.org) and developed a bespoke CRM platform to streamline operations, manage our team and programs, handle grants and donations, and automate processes. This system will help us expand more efficiently, reducing paperwork and improving communication with patients and partners. We are excited to offer new programs, including diabetes awareness and management, cholesterol monitoring, and developing our remote patient monit
HGF Spotlight on Lenny Zakim Fund website.
We've also implemented a bespoke CRM system to optimize our processes and facilitate team management. This system allows us to manage our team more effectively, automate processes, and collaborate better with patients while protecting their files. Our website and platform have been revamped, and we're working on better telling our story and showcasing our impact.
Upcoming Projects and Events
We are exploring geographic expansion and deepening our impact online. To reach more people, we plan to establish a new space for in-person services and a mobile van.
Call for Support
Current needs at HGF include funding/donations and volunteers to assist with screenings, primarily volunteers with medical expertise.
We're looking to expand our Board and welcome new members with diverse skills and networks (See Ideal Board Member Personas and Minimum Obligations). If you're passionate about improving cardiac health outcomes and have experience in healthcare, non-profit management, finance, marketing, or community outreach, please contact us, refer, or nominate someone.
Upcoming Events
Community Heart Walk:** Save the date for October 12, when we'll celebrate our inaugural Heart of a Giant Day with the first Boston Community Heart Walk.
Gala Night: Our first gala will be held early next year, potentially in February (Heart Month). Stay tuned for more details and a save-the-date announcement.
How You Can Help with Fundraising Efforts
Subscribe to heartofagiant.org and follow our social media pages
Donate: Contributions of any size are greatly appreciated. Text to Donate: Text the code "OURWALK" to 44-321.
Peer-to-Peer Fundraising: Consider setting up a fundraiser on behalf of the foundation.
Corporate Sponsorships: Connect us with potential sponsors or partners.
Spread the Word: Share our mission and events with your network.
Thank you for your continued support. Let's stay connected. We're excited about the future and grateful for your involvement. Please feel free to reach out if you'd like to join our board, volunteer, or support us in any way.
In health,
Bouba
The Heart of a Giant Foundation, Inc. is a 501(c)(3) nonprofit organization, EIN 84-2900386. Donations are tax-deductible.