HGF
Welcome Message
On the behalf of our team and myself, welcome to our Website.
Heart of a Giant Foundation (HGF) was born from my personal journey and steadfast commitment to advocacy, resilience, and positive change. Throughout my journey to receiving a heart transplant, I gained a unique insight into the challenges and intricacies of our healthcare system. This life-altering experience ignited my passion to support others navigating similar paths, a journey I understand intimately.
Meet the Founder
Meet Somaneh 'Bouba'!
Business Professional, Entrepreneur, and Heart Health Advocate
Somaneh "Bouba" Diemé is an accomplished engineer, passionate entrepreneur, and dedicated community leader committed to empowering patients, caregivers, and the broader community in heart health. As a long-time heart patient turned community health innovator, Bouba leverages his unique experiences and skills to foster connection, learning, and growth among patients and healthcare professionals.
Personal Journey and Mission:
Bouba's journey began over a decade ago when he was diagnosed with a congenital heart condition, leading to a prolonged battle with chronic heart disease and, ultimately, a life-saving heart transplant. This personal experience ignited his commitment to raising awareness, providing support, and driving positive change for those affected by heart conditions, particularly in at-risk communities.
Heart of a Giant Foundation:
As the founder of the Heart of a Giant Foundation (HGF), Bouba has led the organization to achieve significant milestones in empowering individuals at high risk of heart conditions. The foundation's programs focus on education, support, and direct intervention, helping individuals achieve self-sufficiency and improved quality of life.
Global Impact and Leadership:
Bouba is renowned for his advocacy and leadership in healthcare innovation, focusing on preventing heart diseases and improving patient outcomes. His mission to enhance local and global health is fueled by his social connections, professional knowledge, and personal experience with heart failure. By volunteering within his community and bringing a unique perspective from living in diverse parts of the world, including areas with limited resources, Bouba continues to make significant strides in raising awareness and driving positive change.
Community and Beyond:
Based in Boston, MA, with his family, Bouba's impact extends beyond his local community to his home countries of Mali and Senegal. His dedication to fostering connections and improving healthcare initiatives has made him a sought-after speaker and collaborator.
Contact Information:
For speaking engagements, collaborations, or partnership opportunities, please feel free to reach out to Bouba. Together, we can make a difference in the lives of those affected by heart conditions. Contact details can be provided upon request.
Key Achievements and Focus Areas:
- Education: Providing comprehensive heart health education to at-risk communities.
- Support: Offering resources and support networks for patients and caregivers.
- Direct Intervention: Implementing programs that directly improve the quality of life for individuals with heart conditions.
- Advocacy: Raising awareness and driving changes to enhance heart health outcomes globally.
Bouba's unwavering commitment and innovative approach inspire and empower individuals and communities worldwide.
Bouba’s Blog
Welcome to My Blog!
Welcome to My Heart Health Journey Blog
Hello, I'm Somaneh "Bouba" Diemé, a passionate advocate for heart health and the founder of the Heart of a Giant Foundation. I'm thrilled to have you join me here as I share my personal journey with heart failure and life as a heart transplant recipient.
From 2012 to 2022, I survived congestive heart failure caused by a congenital heart defect, leading to open-heart surgery to implant an LVAD (Left Ventricular Assist Device) pump. After a six-year wait, I finally received a heart transplant in late 2022. This journey has not only shaped my life but also fueled my commitment to improving patient outcomes and empowering individuals to lead healthier lives.
Through this blog, I aim to:
-Share my unfiltered experiences as a heart failure survivor and heart transplant recipient.
-Provide insights into the patient's perspective, making it more relevant to the improvement of therapies and healthcare systems.
-Empower and educate others about heart health, advocacy, and the power of community support.
-Inspire hope and resilience in those facing similar challenges.
Join the Journey.I invite you to be part of this journey, engaging with my stories, learning from my experiences, and contributing to the conversation. Together, we can drive positive change in heart health outcomes and improve the lives of patients worldwide.
Thank you for your support and for being part of this community!
New to the blog? Start by exploring some of my key posts and don't forget to subscribe to stay updated on new content.
Disclaimer: The information shared on this blog is based on my personal experiences and is not intended to replace professional medical advice. Always consult with a healthcare provider for any medical issues.
Latest Blogs
Minimum Obligations for Heart of a Giant Foundation Board Members
Minimum Obligations for Heart of a Giant Foundation Board Members
As a board member of the Heart of a Giant Foundation, members are expected to fulfill the following minimum obligations to support the organization's mission and success:
Attendance and Participation:
Regularly attend and actively participate in board meetings.
Contribute thoughtful insights and perspectives to discussions.
Engage in decision-making processes to ensure the foundation's effectiveness.
Participate in at least one Board Committee when asked
Financial Oversight:
Review and approve the organization's budget.
Scrutinize financial reports to ensure accuracy and transparency.
Help establish and maintain sound financial controls for responsible resource management.
Fundraising:
Make a personal financial contribution that aligns with your capacity.
Utilize your personal and professional networks to identify potential donors and funding sources.
Participate in fundraising initiatives and events to support the foundation's financial sustainability.
Strategic Planning:
Collaborate in the development of HGF’s long-term strategic plan.
Ensure the plan aligns with the mission, vision, and goals of the organization.
Actively participate in the implementation and evaluation of the strategic plan's progress.
Advocacy and Promotion:
Serve as an ambassador for the foundation within your personal and professional circles.
Promote the foundation's mission, programs, and impact to raise awareness and support.
Identify opportunities for collaboration and partnerships to expand the foundation's reach.
Compliance and Governance:
Ensure the organization’s compliance with legal requirements and regulations applicable to nonprofit organizations.
Adhere to HGF's bylaws, policies, and procedures to maintain good governance practices.
News & Media
Sign-up to stay updated with the latest news, interviews, and media appearances of Somaneh “Bouba” Diemé.
Discover how Bouba makes waves in healthcare advocacy, patient support, and heart health education. Follow his journey as he shares insights, success stories, and ongoing efforts to drive positive change in healthcare systems worldwide.
Latest News
Minimum Obligations for Heart of a Giant Foundation Board Members
Minimum Obligations for Heart of a Giant Foundation Board Members
As a board member of the Heart of a Giant Foundation, members are expected to fulfill the following minimum obligations to support the organization's mission and success:
Attendance and Participation:
Regularly attend and actively participate in board meetings.
Contribute thoughtful insights and perspectives to discussions.
Engage in decision-making processes to ensure the foundation's effectiveness.
Participate in at least one Board Committee when asked
Financial Oversight:
Review and approve the organization's budget.
Scrutinize financial reports to ensure accuracy and transparency.
Help establish and maintain sound financial controls for responsible resource management.
Fundraising:
Make a personal financial contribution that aligns with your capacity.
Utilize your personal and professional networks to identify potential donors and funding sources.
Participate in fundraising initiatives and events to support the foundation's financial sustainability.
Strategic Planning:
Collaborate in the development of HGF’s long-term strategic plan.
Ensure the plan aligns with the mission, vision, and goals of the organization.
Actively participate in the implementation and evaluation of the strategic plan's progress.
Advocacy and Promotion:
Serve as an ambassador for the foundation within your personal and professional circles.
Promote the foundation's mission, programs, and impact to raise awareness and support.
Identify opportunities for collaboration and partnerships to expand the foundation's reach.
Compliance and Governance:
Ensure the organization’s compliance with legal requirements and regulations applicable to nonprofit organizations.
Adhere to HGF's bylaws, policies, and procedures to maintain good governance practices.
The Heart of a Giant Foundation, Inc. is a 501(c)(3) nonprofit organization, EIN 84-2900386. Donations are tax-deductible.
