HGF

Welcome Message

On the behalf of our team and myself, welcome to our Website.

Heart of a Giant Foundation (HGF) was born from my personal journey and steadfast commitment to advocacy, resilience, and positive change. Throughout my journey to receiving a heart transplant, I gained a unique insight into the challenges and intricacies of our healthcare system. This life-altering experience ignited my passion to support others navigating similar paths, a journey I understand intimately.

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Meet the Founder

Meet Somaneh 'Bouba'!

Business Professional, Entrepreneur, and Heart Health Advocate

Somaneh "Bouba" Diemé is an accomplished engineer, passionate entrepreneur, and dedicated community leader committed to empowering patients, caregivers, and the broader community in heart health. As a long-time heart patient turned community health innovator, Bouba leverages his unique experiences and skills to foster connection, learning, and growth among patients and healthcare professionals.

Personal Journey and Mission:

Bouba's journey began over a decade ago when he was diagnosed with a congenital heart condition, leading to a prolonged battle with chronic heart disease and, ultimately, a life-saving heart transplant. This personal experience ignited his commitment to raising awareness, providing support, and driving positive change for those affected by heart conditions, particularly in at-risk communities.

Heart of a Giant Foundation:

As the founder of the Heart of a Giant Foundation (HGF), Bouba has led the organization to achieve significant milestones in empowering individuals at high risk of heart conditions. The foundation's programs focus on education, support, and direct intervention, helping individuals achieve self-sufficiency and improved quality of life.

Global Impact and Leadership:

Bouba is renowned for his advocacy and leadership in healthcare innovation, focusing on preventing heart diseases and improving patient outcomes. His mission to enhance local and global health is fueled by his social connections, professional knowledge, and personal experience with heart failure. By volunteering within his community and bringing a unique perspective from living in diverse parts of the world, including areas with limited resources, Bouba continues to make significant strides in raising awareness and driving positive change.

Community and Beyond:

Based in Boston, MA, with his family, Bouba's impact extends beyond his local community to his home countries of Mali and Senegal. His dedication to fostering connections and improving healthcare initiatives has made him a sought-after speaker and collaborator.

Contact Information:

For speaking engagements, collaborations, or partnership opportunities, please feel free to reach out to Bouba. Together, we can make a difference in the lives of those affected by heart conditions. Contact details can be provided upon request.

Key Achievements and Focus Areas:

- Education: Providing comprehensive heart health education to at-risk communities.

- Support: Offering resources and support networks for patients and caregivers.

- Direct Intervention: Implementing programs that directly improve the quality of life for individuals with heart conditions.

- Advocacy: Raising awareness and driving changes to enhance heart health outcomes globally.

Bouba's unwavering commitment and innovative approach inspire and empower individuals and communities worldwide.

Bouba’s Blog

Welcome to My Blog!

Welcome to My Heart Health Journey Blog

Hello, I'm Somaneh "Bouba" Diemé, a passionate advocate for heart health and the founder of the Heart of a Giant Foundation. I'm thrilled to have you join me here as I share my personal journey with heart failure and life as a heart transplant recipient.

From 2012 to 2022, I survived congestive heart failure caused by a congenital heart defect, leading to open-heart surgery to implant an LVAD (Left Ventricular Assist Device) pump. After a six-year wait, I finally received a heart transplant in late 2022. This journey has not only shaped my life but also fueled my commitment to improving patient outcomes and empowering individuals to lead healthier lives.

Through this blog, I aim to:

-Share my unfiltered experiences as a heart failure survivor and heart transplant recipient.

-Provide insights into the patient's perspective, making it more relevant to the improvement of therapies and healthcare systems.

-Empower and educate others about heart health, advocacy, and the power of community support.

-Inspire hope and resilience in those facing similar challenges.

Join the Journey.I invite you to be part of this journey, engaging with my stories, learning from my experiences, and contributing to the conversation. Together, we can drive positive change in heart health outcomes and improve the lives of patients worldwide.

Thank you for your support and for being part of this community!

New to the blog? Start by exploring some of my key posts and don't forget to subscribe to stay updated on new content.

Disclaimer: The information shared on this blog is based on my personal experiences and is not intended to replace professional medical advice. Always consult with a healthcare provider for any medical issues.

Latest Blogs

review-of-a-six-year-heart-transplant-journey, somaneh-bouba, diagnosis-and-challenges, heart-health, medical-journey

REVIEW OF A SIX-YEAR HEART TRANSPLANT JOURNEY WITH SOMANEH BOUBA: DIAGNOSIS & CHALLENGES

May 13, 20234 min read

Today’s episode is a little different. Join us as Somaneh Bouba speaks about his heart transplant journey six months after with his new heart. Bouba has overcome tremendous challenges in his six year-long heart transplant journey. As a dedicated husband, father, senior corporate manager and social entrepreneur, Somaneh has navigated his way through the complex world of heart transplantation with grace and resilience. His personal experiences have given him unique insights and perspectives on the challenges those recovering from a heart transplant face.

Join us as Somaneh shares his inspiring story and offers invaluable advice for fellow and future transplant recipients.

In this episode, learn more about:

  • Navigating the complexities of heart transplant recovery.

  • The crucial role of robust support networks during health challenges.

  • Mastering medication management and side effect mitigation.

  • The emotional rollercoaster post-heart transplant.

  • Cultivating a grateful and positive mindset to weather any storm.

Custom HTML/CSS/JAVASCRIPT

Catch the bonus content on our Youtube channel.
https://www.youtube.com/@heartofagiant

Did you enjoy this episode? A free way to support our show is by leaving it a rating and review on Apple Podcasts. It’s a chance to tell us what you love about the show, and it helps others discover the Living with Heart Disease podcast.


Apple Podcast
https://podcasts.apple.com/us/podcast/episode-10-inspiring-journey-from-heart-failure-to/id1567454596?i=1000608329515

Spotify https://open.spotify.com/show/4aJeFMvnXyazgGuhR8A4Xs?si=6d9f19949f514714&nd=1

Connect with me:

Instagram: livingwithheartdisease.podcast
Facebook: https://www.facebook.com/heartofagiant.foundation
YouTube: https://www.youtube.com/@heartofagiant
Twitter:     https://twitter.com/LWHDpodcast

Chapter Summaries:

Time-stamped summary of this episode:

00:00:00 – Introduction,
Bouba Somaneh begins the podcast episode by thanking the audience for joining and introducing the topic, which is his own heart disease story.

00:01:25 – Bouba talks about his early diagnosis of dilated cardiomyopathy and how he managed to live with it through medication and lifestyle changes. He also talks about moving to Senegal, launching a business, and getting accepted into President Obama flagship’s Young African Leadership Initiative.

00:04:27 – Bouba talks about how his condition got abruptly worse a few days after arriving in  the US for his fellowship and had to be put on the transplant list. He talks about the significant operations he had to undergo and the life changes he had to make, including moving with his wife to Boston and staying with his in-laws for a year.

00:12:38 – Bouba talks about receiving the call for a new heart on a Friday afternoon and got everything to get to the hospital. He talks about the procedure and waking up two days later.

00:15:41 – He discusses his recovery and ICU stay after his heart transplant,the intense monitoring in ICU, his struggles with blood pressure and balance, and passing out once in the hospital. He also talks about the attention and focus of the nurses and the patience required during recovery.

00:21:41 – Bouba discusses the medication and adjustments required after his heart transplant, including antirejection medications and vitamin intake. He talks about the importance of being aware of side effects and having a support system during recovery.

00:25:46 – The day before he got the phone call for the transplant, he received an offer for a new job which he accepted while in ICU. Bouba talks about negotiating his start date with his employer and the importance of proper operations and compliance for the Foundation.

00:29:15 – Bouba discusses the importance of having a solid support system during recovery, including managing children and helping them understand the transplant process.

00:30:05 – The joy of hearing his new heart and the excitement of others at the hospital. He notes that his kids visited the hospital to listen to his new heartbeat. They were amazed by the sound. These moments were fun.

00:30:38 – Bouba talks about the difficulty of being at the hospital away from his boys It was not easy for the boys, especially the younger twin, who had difficulty with the absence Thankfully, his attitude changed for the better once Bouba returned home.

00:31:22 – Bouba expresses gratitude for his medical team, friends, and family, and everyone who supported them during his recovery. He highlighted The Heart of a Giant at the Foundation team, who kept leading work. He had something to look forward to, which helped them stay positive throughout the process.

00:31:55 – Bouba talks about his plans for the future, including delivering at home, working on the Foundation, and helping others going through similar experiences. 

heart healthheartdiseasehearttransplantinterviewIvadpodcaststorytelling
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News & Media

Sign-up to stay updated with the latest news, interviews, and media appearances of Somaneh “Bouba” Diemé.

Discover how Bouba makes waves in healthcare advocacy, patient support, and heart health education. Follow his journey as he shares insights, success stories, and ongoing efforts to drive positive change in healthcare systems worldwide.

Latest News

review-of-a-six-year-heart-transplant-journey, somaneh-bouba, diagnosis-and-challenges, heart-health, medical-journey

REVIEW OF A SIX-YEAR HEART TRANSPLANT JOURNEY WITH SOMANEH BOUBA: DIAGNOSIS & CHALLENGES

May 13, 20234 min read

Today’s episode is a little different. Join us as Somaneh Bouba speaks about his heart transplant journey six months after with his new heart. Bouba has overcome tremendous challenges in his six year-long heart transplant journey. As a dedicated husband, father, senior corporate manager and social entrepreneur, Somaneh has navigated his way through the complex world of heart transplantation with grace and resilience. His personal experiences have given him unique insights and perspectives on the challenges those recovering from a heart transplant face.

Join us as Somaneh shares his inspiring story and offers invaluable advice for fellow and future transplant recipients.

In this episode, learn more about:

  • Navigating the complexities of heart transplant recovery.

  • The crucial role of robust support networks during health challenges.

  • Mastering medication management and side effect mitigation.

  • The emotional rollercoaster post-heart transplant.

  • Cultivating a grateful and positive mindset to weather any storm.

Custom HTML/CSS/JAVASCRIPT

Catch the bonus content on our Youtube channel.
https://www.youtube.com/@heartofagiant

Did you enjoy this episode? A free way to support our show is by leaving it a rating and review on Apple Podcasts. It’s a chance to tell us what you love about the show, and it helps others discover the Living with Heart Disease podcast.


Apple Podcast
https://podcasts.apple.com/us/podcast/episode-10-inspiring-journey-from-heart-failure-to/id1567454596?i=1000608329515

Spotify https://open.spotify.com/show/4aJeFMvnXyazgGuhR8A4Xs?si=6d9f19949f514714&nd=1

Connect with me:

Instagram: livingwithheartdisease.podcast
Facebook: https://www.facebook.com/heartofagiant.foundation
YouTube: https://www.youtube.com/@heartofagiant
Twitter:     https://twitter.com/LWHDpodcast

Chapter Summaries:

Time-stamped summary of this episode:

00:00:00 – Introduction,
Bouba Somaneh begins the podcast episode by thanking the audience for joining and introducing the topic, which is his own heart disease story.

00:01:25 – Bouba talks about his early diagnosis of dilated cardiomyopathy and how he managed to live with it through medication and lifestyle changes. He also talks about moving to Senegal, launching a business, and getting accepted into President Obama flagship’s Young African Leadership Initiative.

00:04:27 – Bouba talks about how his condition got abruptly worse a few days after arriving in  the US for his fellowship and had to be put on the transplant list. He talks about the significant operations he had to undergo and the life changes he had to make, including moving with his wife to Boston and staying with his in-laws for a year.

00:12:38 – Bouba talks about receiving the call for a new heart on a Friday afternoon and got everything to get to the hospital. He talks about the procedure and waking up two days later.

00:15:41 – He discusses his recovery and ICU stay after his heart transplant,the intense monitoring in ICU, his struggles with blood pressure and balance, and passing out once in the hospital. He also talks about the attention and focus of the nurses and the patience required during recovery.

00:21:41 – Bouba discusses the medication and adjustments required after his heart transplant, including antirejection medications and vitamin intake. He talks about the importance of being aware of side effects and having a support system during recovery.

00:25:46 – The day before he got the phone call for the transplant, he received an offer for a new job which he accepted while in ICU. Bouba talks about negotiating his start date with his employer and the importance of proper operations and compliance for the Foundation.

00:29:15 – Bouba discusses the importance of having a solid support system during recovery, including managing children and helping them understand the transplant process.

00:30:05 – The joy of hearing his new heart and the excitement of others at the hospital. He notes that his kids visited the hospital to listen to his new heartbeat. They were amazed by the sound. These moments were fun.

00:30:38 – Bouba talks about the difficulty of being at the hospital away from his boys It was not easy for the boys, especially the younger twin, who had difficulty with the absence Thankfully, his attitude changed for the better once Bouba returned home.

00:31:22 – Bouba expresses gratitude for his medical team, friends, and family, and everyone who supported them during his recovery. He highlighted The Heart of a Giant at the Foundation team, who kept leading work. He had something to look forward to, which helped them stay positive throughout the process.

00:31:55 – Bouba talks about his plans for the future, including delivering at home, working on the Foundation, and helping others going through similar experiences. 

heart healthheartdiseasehearttransplantinterviewIvadpodcaststorytelling
Back to Blog

Get In Touch

Milton St, Boston, MA, USA

The Heart of a Giant Foundation, Inc. is a 501(c)(3) nonprofit organization, EIN 84-2900386. Donations are tax-deductible.

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