HGF

Welcome Message

On the behalf of our team and myself, welcome to our Website.

Heart of a Giant Foundation (HGF) was born from my personal journey and steadfast commitment to advocacy, resilience, and positive change. Throughout my journey to receiving a heart transplant, I gained a unique insight into the challenges and intricacies of our healthcare system. This life-altering experience ignited my passion to support others navigating similar paths, a journey I understand intimately.

Read More.

Meet the Founder

Meet Somaneh 'Bouba'!

Business Professional, Entrepreneur, and Heart Health Advocate

Somaneh "Bouba" Diemé is an accomplished engineer, passionate entrepreneur, and dedicated community leader committed to empowering patients, caregivers, and the broader community in heart health. As a long-time heart patient turned community health innovator, Bouba leverages his unique experiences and skills to foster connection, learning, and growth among patients and healthcare professionals.

Personal Journey and Mission:

Bouba's journey began over a decade ago when he was diagnosed with a congenital heart condition, leading to a prolonged battle with chronic heart disease and, ultimately, a life-saving heart transplant. This personal experience ignited his commitment to raising awareness, providing support, and driving positive change for those affected by heart conditions, particularly in at-risk communities.

Heart of a Giant Foundation:

As the founder of the Heart of a Giant Foundation (HGF), Bouba has led the organization to achieve significant milestones in empowering individuals at high risk of heart conditions. The foundation's programs focus on education, support, and direct intervention, helping individuals achieve self-sufficiency and improved quality of life.

Global Impact and Leadership:

Bouba is renowned for his advocacy and leadership in healthcare innovation, focusing on preventing heart diseases and improving patient outcomes. His mission to enhance local and global health is fueled by his social connections, professional knowledge, and personal experience with heart failure. By volunteering within his community and bringing a unique perspective from living in diverse parts of the world, including areas with limited resources, Bouba continues to make significant strides in raising awareness and driving positive change.

Community and Beyond:

Based in Boston, MA, with his family, Bouba's impact extends beyond his local community to his home countries of Mali and Senegal. His dedication to fostering connections and improving healthcare initiatives has made him a sought-after speaker and collaborator.

Contact Information:

For speaking engagements, collaborations, or partnership opportunities, please feel free to reach out to Bouba. Together, we can make a difference in the lives of those affected by heart conditions. Contact details can be provided upon request.

Key Achievements and Focus Areas:

- Education: Providing comprehensive heart health education to at-risk communities.

- Support: Offering resources and support networks for patients and caregivers.

- Direct Intervention: Implementing programs that directly improve the quality of life for individuals with heart conditions.

- Advocacy: Raising awareness and driving changes to enhance heart health outcomes globally.

Bouba's unwavering commitment and innovative approach inspire and empower individuals and communities worldwide.

Bouba’s Blog

Welcome to My Blog!

Welcome to My Heart Health Journey Blog

Hello, I'm Somaneh "Bouba" Diemé, a passionate advocate for heart health and the founder of the Heart of a Giant Foundation. I'm thrilled to have you join me here as I share my personal journey with heart failure and life as a heart transplant recipient.

From 2012 to 2022, I survived congestive heart failure caused by a congenital heart defect, leading to open-heart surgery to implant an LVAD (Left Ventricular Assist Device) pump. After a six-year wait, I finally received a heart transplant in late 2022. This journey has not only shaped my life but also fueled my commitment to improving patient outcomes and empowering individuals to lead healthier lives.

Through this blog, I aim to:

-Share my unfiltered experiences as a heart failure survivor and heart transplant recipient.

-Provide insights into the patient's perspective, making it more relevant to the improvement of therapies and healthcare systems.

-Empower and educate others about heart health, advocacy, and the power of community support.

-Inspire hope and resilience in those facing similar challenges.

Join the Journey.I invite you to be part of this journey, engaging with my stories, learning from my experiences, and contributing to the conversation. Together, we can drive positive change in heart health outcomes and improve the lives of patients worldwide.

Thank you for your support and for being part of this community!

New to the blog? Start by exploring some of my key posts and don't forget to subscribe to stay updated on new content.

Disclaimer: The information shared on this blog is based on my personal experiences and is not intended to replace professional medical advice. Always consult with a healthcare provider for any medical issues.

Latest Blogs

HEALTHY HEARTS WEBINAR SERIES: 02 SIGNS OF A STROKE

HEALTHY HEARTS WEBINAR SERIES: 02 SIGNS OF A STROKE

May 10, 20237 min read
Custom HTML/CSS/JAVASCRIPT

Sarah Falcone, RN, and Yesica Santana, RN, discuss the importance of recognizing the signs of stroke, how to reduce your risk of a stroke, identifying if you are having a stroke, and what to do if you are having a stroke—concluded by Q&A with Sarah and Yesica and fellow Heart of a Giant Nurses, Maria and Idongesit. After watching this webinar, you will have a clear understanding of what a stroke is and what to do if you see signs of a stroke. Click here to download the materials from the webinar.

4:39 Introduction to Sarah and Yesica
4:57 Heart of A Giant Foundation’s Mission
5:10 Stroke Facts
5:50 What is a Stroke?
6:43 Ischemic Stroke
7:16 Hemorrhagic Stroke
7:20 Transient Ischemic Attack known as TIA “mini-stroke.”
7:50 Stroke Risk Factors
9:22 Some have a Higher Risk
10:16 The Simple 7 to Reduce your Risk of a Stroke
12:31 Stroke Warning Signs 
12:52 F.A.S.T acronym to remember the signs of a stroke
13:11 The Signs of a Stroke
15:27 Other Symptoms of a Stroke   
16:25 If you think you are having a stroke
17:03 Steps to take before an Emergency 
18:21Q&A
18:41 F.A.S.T acronym, and Does it work for all types of stroke?
47:53 Call to Action to Join the Healthy Hearts Community Program https://heartofagiant.foundation/sign-up-free-for-2hc/

What is a Stroke? (5:50)   

A stroke occurs when blood circulation to the brain is affected; either the blood flow is stopped, or, impaired. As a result, the blood can’t get to the part of the brain that it needs to for your brain.

Three types of Strokes
– Ischemic:
Blood vessels are blocked by a clot or fatty plaque or burst.
– Hemorrhagic: A brain bleed
– Transient Ischemic Attack (TIA): Mimi-stroke

Factors that can increase your risk (7:50)
Age- 
The chance of a stroke doubles for each decade of life over age 55
Heredity (Family History)- Higher risk if grandparents, parents, sister, or brother have had a stroke. 
Race/Ethnicity- African- Americans have a much higher risk of death from stroke.
Sex- Women have more strokes than men
Prior Stroke, TIA, or Heart Attack- If you’ve had a stroke or heart attack, your risk increases.
The Simple 7 to reduce your risk (10:16)

  1. Get Active

  2. Eat Better 

  3. Control Weight

  4. Avoid Smoking

  5. Manage Cholesterol

  6. Maintain Blood Pressure

  7. Control Blood Sugar

Plus, Get regular check-ups and take medicine as prescribed.

Stroke Warning Signs (12:31)
Use F.A.S.T to help see the warning signs
F.A.S.T is an acronym for Face. Arm. Speech. Time

Face Drooping- Does one side of the face droop, or is it numb? Ask the person to smile, and look to see if it is uneven.
Arm Weakness- Is one arm weak? Ask the person to raise both arms. Does one arm drift downward?
Speech Difficulty- Is speech slurred? Is the person unable to speak? Ask the person to repeat a simple sentence like “The sky is blue.” Is the sentence repeated correctly?
Time to Call 9-1-1- If someone shows any of these symptoms, even if the symptoms go away, call 9-1-1 and get them to the hospital immediately. Check the time, so you’ll know when the first symptoms appeared. 

Other Symptoms (15:27)
– Sudden numbness or weakness of the leg, arm, or face.
– Sudden confusion or trouble understanding
– Sudden trouble seeing in one or both eyes
– Sudden trouble walking, dizziness, loss of balance, or coordination
– Sudden server headache with no known cause

Call 9-1-1 if someone shows any of these symptoms 

If you think you are having a stroke
Get to the hospital right away
Don’t drive yourself (get a neighbor or a family member to drive you)
Get Help F.A.S.T

Four out of five strokes, about 80% can be prevented. So that means they could not have happened.

Resources in this Webinar
https://www.empoweredtoserve.org/en/
https://www.heart.org/en/professional/quality-improvement/hospital-maps
https://www.strokeassociation.org/warningsigns

Learn more about Healthy Hearts Communities “I Am Because We Are.”
https://heartofagiant.foundation/sign-up-free-for-2hc/

Comprehensive healthcare support, education, coaching, and access to digital health technology to patients and their families between doctor’s visits to better health outcomes.
Sign up here for the Healthy Hearts Community. It’s Free


Here are some key moments in the discussion:

10:31 Yesica on routine “I always tell as a coach, as a registered nurse I would say, stay active, get active, get a routine every day. Moving your body is really really beneficial for you to have a routine and keep moving.”

13:22 Yesica on Identifying Signs “Most people would have even side of the face, and you will notice, right. And also, they will be complaining of numbness. And one of the things that you could do is to ask the person, can you smile for me?”

19:00 Yesica “F.A.S.T. It’s actually proven by the American Heart Association (AHA) that it is part of the warning sign, and it can, does save your life.”

19:14  Sarah “ I just wanted to mention that there was a study in the AHA Journal. They studied patients who, I guess, came into the hospital with the fast signs of a suspected stroke. And they found out that a F.A.S.T assessment will give an 88% sensitivity for detecting a stroke. There are some types of stroke that maybe that face arms and speech won’t signal.” 

21:19 Idongesit on knowing the signs  “mentioned that there are sometimes different presentations in women. So women may have atypical signs such as jaw pain, and may not know until it’s too late.”

24:10 Sarah on stroke severity “Strokes can be very mild, such as the case of the TIA, the trans ischemic attack, or the mini-stroke. Those sometimes may not leave any sequella or symptoms after they resolve on their own.”

24:52 Sarah on stroke severity “You can have a severe stroke that may cause a person not to be able to walk or talk anymore for the rest of their life, or they could have a very sudden stroke that causes the brain to stop. And a patient becomes brain dead or dies. So it could be a wide range of different types of strokes and how serious they depend on the case.”

31:47 Maria on atypical signs of a stroke in Women “One thing that is important for women to know is that if you, all of a sudden, are they’re asleep and you wake up with what we call a Thunderclap headache, an unusual headache. You may have chronic headaches, but one day you wake up with a more severe headache. And it’s like the worst headache of your life. That’s a 9 1 1 because you may not have any other symptoms, but that can be a big sign for stroke.”

32:55 Sarah, on an atypical case of a women patient, “I had a lady. Who thought her glasses prescription was wrong. She had a sudden change in vision, but she thought, oh, it’s just time for me to get my eyes checked. I haven’t had my eyes checked in a long while, so she put it off another month or so. And by the time she went to the doctor and they looked at her eyes, the eye doctor, they came out and said, ma’am, I’m sorry, you need to go to the hospital right now. There’s been. Something we can see something’s blown out in your eye, and you need to get a brain scan right now. So that’s an example, a real-life example. If you can see across the room one day and tomorrow you can’t, call your doctor.”

39:11 Maria’s personal story “My husband had a stroke, and he had numbness in his right leg for quite a while. And he the most motive motivated person. I know. And he not only went to rehab, but when he came home, he did his own. Own therapy, own rehab, and now he’s fully functioning, and back to work. So again, as Sarah said, it always depends on the person and how hard they’re going to work. Somethings you can’t get back depending on where the stroke is.”

Stroke AwarenessBrain HealthStroke SymptomsNeurologyFAST (Face, Arms, Speech, Time)Stroke Risk FactorsStroke PreventionAct FASTCerebrovascular HealthStroke Recoveryoldhgfposts
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News & Media

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Latest News

HEALTHY HEARTS WEBINAR SERIES: 02 SIGNS OF A STROKE

HEALTHY HEARTS WEBINAR SERIES: 02 SIGNS OF A STROKE

May 10, 20237 min read
Custom HTML/CSS/JAVASCRIPT

Sarah Falcone, RN, and Yesica Santana, RN, discuss the importance of recognizing the signs of stroke, how to reduce your risk of a stroke, identifying if you are having a stroke, and what to do if you are having a stroke—concluded by Q&A with Sarah and Yesica and fellow Heart of a Giant Nurses, Maria and Idongesit. After watching this webinar, you will have a clear understanding of what a stroke is and what to do if you see signs of a stroke. Click here to download the materials from the webinar.

4:39 Introduction to Sarah and Yesica
4:57 Heart of A Giant Foundation’s Mission
5:10 Stroke Facts
5:50 What is a Stroke?
6:43 Ischemic Stroke
7:16 Hemorrhagic Stroke
7:20 Transient Ischemic Attack known as TIA “mini-stroke.”
7:50 Stroke Risk Factors
9:22 Some have a Higher Risk
10:16 The Simple 7 to Reduce your Risk of a Stroke
12:31 Stroke Warning Signs 
12:52 F.A.S.T acronym to remember the signs of a stroke
13:11 The Signs of a Stroke
15:27 Other Symptoms of a Stroke   
16:25 If you think you are having a stroke
17:03 Steps to take before an Emergency 
18:21Q&A
18:41 F.A.S.T acronym, and Does it work for all types of stroke?
47:53 Call to Action to Join the Healthy Hearts Community Program https://heartofagiant.foundation/sign-up-free-for-2hc/

What is a Stroke? (5:50)   

A stroke occurs when blood circulation to the brain is affected; either the blood flow is stopped, or, impaired. As a result, the blood can’t get to the part of the brain that it needs to for your brain.

Three types of Strokes
– Ischemic:
Blood vessels are blocked by a clot or fatty plaque or burst.
– Hemorrhagic: A brain bleed
– Transient Ischemic Attack (TIA): Mimi-stroke

Factors that can increase your risk (7:50)
Age- 
The chance of a stroke doubles for each decade of life over age 55
Heredity (Family History)- Higher risk if grandparents, parents, sister, or brother have had a stroke. 
Race/Ethnicity- African- Americans have a much higher risk of death from stroke.
Sex- Women have more strokes than men
Prior Stroke, TIA, or Heart Attack- If you’ve had a stroke or heart attack, your risk increases.
The Simple 7 to reduce your risk (10:16)

  1. Get Active

  2. Eat Better 

  3. Control Weight

  4. Avoid Smoking

  5. Manage Cholesterol

  6. Maintain Blood Pressure

  7. Control Blood Sugar

Plus, Get regular check-ups and take medicine as prescribed.

Stroke Warning Signs (12:31)
Use F.A.S.T to help see the warning signs
F.A.S.T is an acronym for Face. Arm. Speech. Time

Face Drooping- Does one side of the face droop, or is it numb? Ask the person to smile, and look to see if it is uneven.
Arm Weakness- Is one arm weak? Ask the person to raise both arms. Does one arm drift downward?
Speech Difficulty- Is speech slurred? Is the person unable to speak? Ask the person to repeat a simple sentence like “The sky is blue.” Is the sentence repeated correctly?
Time to Call 9-1-1- If someone shows any of these symptoms, even if the symptoms go away, call 9-1-1 and get them to the hospital immediately. Check the time, so you’ll know when the first symptoms appeared. 

Other Symptoms (15:27)
– Sudden numbness or weakness of the leg, arm, or face.
– Sudden confusion or trouble understanding
– Sudden trouble seeing in one or both eyes
– Sudden trouble walking, dizziness, loss of balance, or coordination
– Sudden server headache with no known cause

Call 9-1-1 if someone shows any of these symptoms 

If you think you are having a stroke
Get to the hospital right away
Don’t drive yourself (get a neighbor or a family member to drive you)
Get Help F.A.S.T

Four out of five strokes, about 80% can be prevented. So that means they could not have happened.

Resources in this Webinar
https://www.empoweredtoserve.org/en/
https://www.heart.org/en/professional/quality-improvement/hospital-maps
https://www.strokeassociation.org/warningsigns

Learn more about Healthy Hearts Communities “I Am Because We Are.”
https://heartofagiant.foundation/sign-up-free-for-2hc/

Comprehensive healthcare support, education, coaching, and access to digital health technology to patients and their families between doctor’s visits to better health outcomes.
Sign up here for the Healthy Hearts Community. It’s Free


Here are some key moments in the discussion:

10:31 Yesica on routine “I always tell as a coach, as a registered nurse I would say, stay active, get active, get a routine every day. Moving your body is really really beneficial for you to have a routine and keep moving.”

13:22 Yesica on Identifying Signs “Most people would have even side of the face, and you will notice, right. And also, they will be complaining of numbness. And one of the things that you could do is to ask the person, can you smile for me?”

19:00 Yesica “F.A.S.T. It’s actually proven by the American Heart Association (AHA) that it is part of the warning sign, and it can, does save your life.”

19:14  Sarah “ I just wanted to mention that there was a study in the AHA Journal. They studied patients who, I guess, came into the hospital with the fast signs of a suspected stroke. And they found out that a F.A.S.T assessment will give an 88% sensitivity for detecting a stroke. There are some types of stroke that maybe that face arms and speech won’t signal.” 

21:19 Idongesit on knowing the signs  “mentioned that there are sometimes different presentations in women. So women may have atypical signs such as jaw pain, and may not know until it’s too late.”

24:10 Sarah on stroke severity “Strokes can be very mild, such as the case of the TIA, the trans ischemic attack, or the mini-stroke. Those sometimes may not leave any sequella or symptoms after they resolve on their own.”

24:52 Sarah on stroke severity “You can have a severe stroke that may cause a person not to be able to walk or talk anymore for the rest of their life, or they could have a very sudden stroke that causes the brain to stop. And a patient becomes brain dead or dies. So it could be a wide range of different types of strokes and how serious they depend on the case.”

31:47 Maria on atypical signs of a stroke in Women “One thing that is important for women to know is that if you, all of a sudden, are they’re asleep and you wake up with what we call a Thunderclap headache, an unusual headache. You may have chronic headaches, but one day you wake up with a more severe headache. And it’s like the worst headache of your life. That’s a 9 1 1 because you may not have any other symptoms, but that can be a big sign for stroke.”

32:55 Sarah, on an atypical case of a women patient, “I had a lady. Who thought her glasses prescription was wrong. She had a sudden change in vision, but she thought, oh, it’s just time for me to get my eyes checked. I haven’t had my eyes checked in a long while, so she put it off another month or so. And by the time she went to the doctor and they looked at her eyes, the eye doctor, they came out and said, ma’am, I’m sorry, you need to go to the hospital right now. There’s been. Something we can see something’s blown out in your eye, and you need to get a brain scan right now. So that’s an example, a real-life example. If you can see across the room one day and tomorrow you can’t, call your doctor.”

39:11 Maria’s personal story “My husband had a stroke, and he had numbness in his right leg for quite a while. And he the most motive motivated person. I know. And he not only went to rehab, but when he came home, he did his own. Own therapy, own rehab, and now he’s fully functioning, and back to work. So again, as Sarah said, it always depends on the person and how hard they’re going to work. Somethings you can’t get back depending on where the stroke is.”

Stroke AwarenessBrain HealthStroke SymptomsNeurologyFAST (Face, Arms, Speech, Time)Stroke Risk FactorsStroke PreventionAct FASTCerebrovascular HealthStroke Recoveryoldhgfposts
Back to Blog

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