HGF

Welcome Message

On the behalf of our team and myself, welcome to our Website.

Heart of a Giant Foundation (HGF) was born from my personal journey and steadfast commitment to advocacy, resilience, and positive change. Throughout my journey to receiving a heart transplant, I gained a unique insight into the challenges and intricacies of our healthcare system. This life-altering experience ignited my passion to support others navigating similar paths, a journey I understand intimately.

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Meet the Founder

Meet Somaneh 'Bouba'!

Business Professional, Entrepreneur, and Heart Health Advocate

Somaneh "Bouba" Diemé is an accomplished engineer, passionate entrepreneur, and dedicated community leader committed to empowering patients, caregivers, and the broader community in heart health. As a long-time heart patient turned community health innovator, Bouba leverages his unique experiences and skills to foster connection, learning, and growth among patients and healthcare professionals.

Personal Journey and Mission:

Bouba's journey began over a decade ago when he was diagnosed with a congenital heart condition, leading to a prolonged battle with chronic heart disease and, ultimately, a life-saving heart transplant. This personal experience ignited his commitment to raising awareness, providing support, and driving positive change for those affected by heart conditions, particularly in at-risk communities.

Heart of a Giant Foundation:

As the founder of the Heart of a Giant Foundation (HGF), Bouba has led the organization to achieve significant milestones in empowering individuals at high risk of heart conditions. The foundation's programs focus on education, support, and direct intervention, helping individuals achieve self-sufficiency and improved quality of life.

Global Impact and Leadership:

Bouba is renowned for his advocacy and leadership in healthcare innovation, focusing on preventing heart diseases and improving patient outcomes. His mission to enhance local and global health is fueled by his social connections, professional knowledge, and personal experience with heart failure. By volunteering within his community and bringing a unique perspective from living in diverse parts of the world, including areas with limited resources, Bouba continues to make significant strides in raising awareness and driving positive change.

Community and Beyond:

Based in Boston, MA, with his family, Bouba's impact extends beyond his local community to his home countries of Mali and Senegal. His dedication to fostering connections and improving healthcare initiatives has made him a sought-after speaker and collaborator.

Contact Information:

For speaking engagements, collaborations, or partnership opportunities, please feel free to reach out to Bouba. Together, we can make a difference in the lives of those affected by heart conditions. Contact details can be provided upon request.

Key Achievements and Focus Areas:

- Education: Providing comprehensive heart health education to at-risk communities.

- Support: Offering resources and support networks for patients and caregivers.

- Direct Intervention: Implementing programs that directly improve the quality of life for individuals with heart conditions.

- Advocacy: Raising awareness and driving changes to enhance heart health outcomes globally.

Bouba's unwavering commitment and innovative approach inspire and empower individuals and communities worldwide.

Bouba’s Blog

Welcome to My Blog!

Welcome to My Heart Health Journey Blog

Hello, I'm Somaneh "Bouba" Diemé, a passionate advocate for heart health and the founder of the Heart of a Giant Foundation. I'm thrilled to have you join me here as I share my personal journey with heart failure and life as a heart transplant recipient.

From 2012 to 2022, I survived congestive heart failure caused by a congenital heart defect, leading to open-heart surgery to implant an LVAD (Left Ventricular Assist Device) pump. After a six-year wait, I finally received a heart transplant in late 2022. This journey has not only shaped my life but also fueled my commitment to improving patient outcomes and empowering individuals to lead healthier lives.

Through this blog, I aim to:

-Share my unfiltered experiences as a heart failure survivor and heart transplant recipient.

-Provide insights into the patient's perspective, making it more relevant to the improvement of therapies and healthcare systems.

-Empower and educate others about heart health, advocacy, and the power of community support.

-Inspire hope and resilience in those facing similar challenges.

Join the Journey.I invite you to be part of this journey, engaging with my stories, learning from my experiences, and contributing to the conversation. Together, we can drive positive change in heart health outcomes and improve the lives of patients worldwide.

Thank you for your support and for being part of this community!

New to the blog? Start by exploring some of my key posts and don't forget to subscribe to stay updated on new content.

Disclaimer: The information shared on this blog is based on my personal experiences and is not intended to replace professional medical advice. Always consult with a healthcare provider for any medical issues.

Latest Blogs

pursuing-heart-health-by-the-numbers

PURSUING HEART HEALTH BY THE NUMBERS

August 01, 20233 min read

When trying to make essential changes to your lifestyle, there are two approaches. The first is largely psychological, and involves making decisions to forego bad habits that may have led to weight gain and high blood pressure (as it was with me), while embarking on a more healthy regimen of diet and exercise.

The second approach is just as important, and revolves around numbers: your blood pressure readings, which should be taken each day, and your weight changes (hopefully gradual and steady reductions) that can be recorded using the home bathroom scale. 

These have become part of my regular routine, since my doctor recommended I take immediate action to address my high blood pressure. Thanks to my friends at Heart of a Giant, I was able to acquire a home blood pressure monitoring kit (available at any major retail pharmacy) to track my numbers every morning before going to work.  The BP check only takes two minutes, and can alert you to any potential spikes in blood pressure that could pose a danger to your health.

My first day taking my blood pressure I registered a 136 over 87. This is far above the accepted “normal” reading of 120/80, but lower than I had been reading at prior medical office visits. I take amlodipine  daily for blood pressure management, and atorvastatin for manage my cholesterol, but now I’m trying to substitute healthier options in my diet to augment the impact of my medicines.

  • Some dietary changes made this month (as I await an appointment with my new nutritionist: 

  • Flavored seltzer water instead of coca cola.

  • Granola bars instead of muffins and donuts

  • More chicken and rice, fewer pork chops and potatoes.

  • More salads, fewer prepared foods.

Regularly monitoring my blood pressure keeps me honest about my dietary habits. Over the first two weeks I saw a slow decline in my lower numbers (although the first number is still too high). My last reading on July 27 was 137 over 81.  As we like to say in Alcoholics Anonymous, the goal is progress, not perfection!

In the same vein, I have started to see a drop in my weight, although it can be frustrating when you feel like you’re starving yourself, only to see little if any change. When I started this campaign for heart health, I weighed just a smidge under 260 pounds. As of this writing, my last weigh-in found me at 251. Not where I need to be, but better than I was before…

So while I try to get used to having vanilla yogurt for breakfast in lieu of bacon, and manage the discipline to avoid my mid-afternoon slice of pizza while driving from appointment to appointment, I keep in mind my motivation for all this: trying to be present and active for my sons, not just now, but for when they grow into adulthood. 

My two oldest boys are in college, and are almost complete in their journey to becoming men. But my little one, now 13, has a long path ahead. I want to be there to share in his experiences, provide guidance when necessary, and witness the outcome at the end. If I can add 10 more years to my life by caring for my heart and keeping my blood pressure in check, then all the missed donuts and Chinese takeout dinners will have been worth it.

About the author:

Lewis Howe is the Community Partnerships Co-Ordinator for the Heart of a Giant Foundation. He welcomes your ideas, suggestions and expressions of support to help him in his fight against high blood pressure. You can reach him at [email protected].

heart-healthnumerical-insightsdata-drivenwellnesscardiovascularmetricsheart-diseaselifestylepreventionoldhgfposts
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News & Media

Sign-up to stay updated with the latest news, interviews, and media appearances of Somaneh “Bouba” Diemé.

Discover how Bouba makes waves in healthcare advocacy, patient support, and heart health education. Follow his journey as he shares insights, success stories, and ongoing efforts to drive positive change in healthcare systems worldwide.

Latest News

pursuing-heart-health-by-the-numbers

PURSUING HEART HEALTH BY THE NUMBERS

August 01, 20233 min read

When trying to make essential changes to your lifestyle, there are two approaches. The first is largely psychological, and involves making decisions to forego bad habits that may have led to weight gain and high blood pressure (as it was with me), while embarking on a more healthy regimen of diet and exercise.

The second approach is just as important, and revolves around numbers: your blood pressure readings, which should be taken each day, and your weight changes (hopefully gradual and steady reductions) that can be recorded using the home bathroom scale. 

These have become part of my regular routine, since my doctor recommended I take immediate action to address my high blood pressure. Thanks to my friends at Heart of a Giant, I was able to acquire a home blood pressure monitoring kit (available at any major retail pharmacy) to track my numbers every morning before going to work.  The BP check only takes two minutes, and can alert you to any potential spikes in blood pressure that could pose a danger to your health.

My first day taking my blood pressure I registered a 136 over 87. This is far above the accepted “normal” reading of 120/80, but lower than I had been reading at prior medical office visits. I take amlodipine  daily for blood pressure management, and atorvastatin for manage my cholesterol, but now I’m trying to substitute healthier options in my diet to augment the impact of my medicines.

  • Some dietary changes made this month (as I await an appointment with my new nutritionist: 

  • Flavored seltzer water instead of coca cola.

  • Granola bars instead of muffins and donuts

  • More chicken and rice, fewer pork chops and potatoes.

  • More salads, fewer prepared foods.

Regularly monitoring my blood pressure keeps me honest about my dietary habits. Over the first two weeks I saw a slow decline in my lower numbers (although the first number is still too high). My last reading on July 27 was 137 over 81.  As we like to say in Alcoholics Anonymous, the goal is progress, not perfection!

In the same vein, I have started to see a drop in my weight, although it can be frustrating when you feel like you’re starving yourself, only to see little if any change. When I started this campaign for heart health, I weighed just a smidge under 260 pounds. As of this writing, my last weigh-in found me at 251. Not where I need to be, but better than I was before…

So while I try to get used to having vanilla yogurt for breakfast in lieu of bacon, and manage the discipline to avoid my mid-afternoon slice of pizza while driving from appointment to appointment, I keep in mind my motivation for all this: trying to be present and active for my sons, not just now, but for when they grow into adulthood. 

My two oldest boys are in college, and are almost complete in their journey to becoming men. But my little one, now 13, has a long path ahead. I want to be there to share in his experiences, provide guidance when necessary, and witness the outcome at the end. If I can add 10 more years to my life by caring for my heart and keeping my blood pressure in check, then all the missed donuts and Chinese takeout dinners will have been worth it.

About the author:

Lewis Howe is the Community Partnerships Co-Ordinator for the Heart of a Giant Foundation. He welcomes your ideas, suggestions and expressions of support to help him in his fight against high blood pressure. You can reach him at [email protected].

heart-healthnumerical-insightsdata-drivenwellnesscardiovascularmetricsheart-diseaselifestylepreventionoldhgfposts
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Milton St, Boston, MA, USA

The Heart of a Giant Foundation, Inc. is a 501(c)(3) nonprofit organization, EIN 84-2900386. Donations are tax-deductible.

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