HGF

Welcome Message

On the behalf of our team and myself, welcome to our Website.

Heart of a Giant Foundation (HGF) was born from my personal journey and steadfast commitment to advocacy, resilience, and positive change. Throughout my journey to receiving a heart transplant, I gained a unique insight into the challenges and intricacies of our healthcare system. This life-altering experience ignited my passion to support others navigating similar paths, a journey I understand intimately.

Read More.

Meet the Founder

Meet Somaneh 'Bouba'!

Business Professional, Entrepreneur, and Heart Health Advocate

Somaneh "Bouba" Diemé is an accomplished engineer, passionate entrepreneur, and dedicated community leader committed to empowering patients, caregivers, and the broader community in heart health. As a long-time heart patient turned community health innovator, Bouba leverages his unique experiences and skills to foster connection, learning, and growth among patients and healthcare professionals.

Personal Journey and Mission:

Bouba's journey began over a decade ago when he was diagnosed with a congenital heart condition, leading to a prolonged battle with chronic heart disease and, ultimately, a life-saving heart transplant. This personal experience ignited his commitment to raising awareness, providing support, and driving positive change for those affected by heart conditions, particularly in at-risk communities.

Heart of a Giant Foundation:

As the founder of the Heart of a Giant Foundation (HGF), Bouba has led the organization to achieve significant milestones in empowering individuals at high risk of heart conditions. The foundation's programs focus on education, support, and direct intervention, helping individuals achieve self-sufficiency and improved quality of life.

Global Impact and Leadership:

Bouba is renowned for his advocacy and leadership in healthcare innovation, focusing on preventing heart diseases and improving patient outcomes. His mission to enhance local and global health is fueled by his social connections, professional knowledge, and personal experience with heart failure. By volunteering within his community and bringing a unique perspective from living in diverse parts of the world, including areas with limited resources, Bouba continues to make significant strides in raising awareness and driving positive change.

Community and Beyond:

Based in Boston, MA, with his family, Bouba's impact extends beyond his local community to his home countries of Mali and Senegal. His dedication to fostering connections and improving healthcare initiatives has made him a sought-after speaker and collaborator.

Contact Information:

For speaking engagements, collaborations, or partnership opportunities, please feel free to reach out to Bouba. Together, we can make a difference in the lives of those affected by heart conditions. Contact details can be provided upon request.

Key Achievements and Focus Areas:

- Education: Providing comprehensive heart health education to at-risk communities.

- Support: Offering resources and support networks for patients and caregivers.

- Direct Intervention: Implementing programs that directly improve the quality of life for individuals with heart conditions.

- Advocacy: Raising awareness and driving changes to enhance heart health outcomes globally.

Bouba's unwavering commitment and innovative approach inspire and empower individuals and communities worldwide.

Bouba’s Blog

Welcome to My Blog!

Welcome to My Heart Health Journey Blog

Hello, I'm Somaneh "Bouba" Diemé, a passionate advocate for heart health and the founder of the Heart of a Giant Foundation. I'm thrilled to have you join me here as I share my personal journey with heart failure and life as a heart transplant recipient.

From 2012 to 2022, I survived congestive heart failure caused by a congenital heart defect, leading to open-heart surgery to implant an LVAD (Left Ventricular Assist Device) pump. After a six-year wait, I finally received a heart transplant in late 2022. This journey has not only shaped my life but also fueled my commitment to improving patient outcomes and empowering individuals to lead healthier lives.

Through this blog, I aim to:

-Share my unfiltered experiences as a heart failure survivor and heart transplant recipient.

-Provide insights into the patient's perspective, making it more relevant to the improvement of therapies and healthcare systems.

-Empower and educate others about heart health, advocacy, and the power of community support.

-Inspire hope and resilience in those facing similar challenges.

Join the Journey.I invite you to be part of this journey, engaging with my stories, learning from my experiences, and contributing to the conversation. Together, we can drive positive change in heart health outcomes and improve the lives of patients worldwide.

Thank you for your support and for being part of this community!

New to the blog? Start by exploring some of my key posts and don't forget to subscribe to stay updated on new content.

Disclaimer: The information shared on this blog is based on my personal experiences and is not intended to replace professional medical advice. Always consult with a healthcare provider for any medical issues.

Latest Blogs

HGF-Lewis-Howe-September

VACATION-PROOFING YOUR HEART HEALTH: BALANCE AND MODERATION

August 09, 20233 min read

Heart Health Needn’t Take a Holiday Just Because You’re On One…

By Lewis C. Howe

If you’re like me, maintaining a regimen of a heart healthy diet, combined with regular exercise and stress reduction techniques, can become a matter of routine with practice and repetition.

But what about those times when we are living outside of our normal routines, and away from the daily monotony of work and workouts?  How do we avoid backsliding during those periods when it’s most tempting to slack off and cut loose?

I experienced this a couple of weeks ago when it was time for a long-awaited (and to my mind well-earned) vacation, nine days on the road visiting my son at college in a distant state, along with a side visit to my two best friends from my own college days (when dinosaurs roamed the earth).

In past years, this would have led to an uninterrupted barrage of late night diner food and deep fried memories. However, now that I live with my hypertension diagnosis, I have learned to follow the path of moderation, and to turn away from some of my more egregious dining habits.

Embracing Southern Delights in Moderation

That is not to say that I consumed nothing but kale and cauliflower during my time away from home. After all, this was a tour of the American South, replete with all the temptations nature and the fryolator can provide.

But I was able to temper my intemperance, while still enjoying my visit with my first born. When we went to the barbecue restaurant, for example, I ordered the catfish sandwich with lettuce and tomato, and passed on the ribs and fried chicken. Moreover, I perused the dessert menu, but elected ultimately not to partake.

Balancing Nostalgia and Health: My Dining Choices Revisited

Similarly, while reminiscing over old times with my college pals during a side trip to New Jersey, dinner was a corned beef sandwich on rye with pickles and slaw, rather than French fries with gravy like in my undergraduate years. By  limiting the “bad stuff” I was able to come home only 4 pounds heavier, and once I settled back in to “work mode” the following week the weight quickly came back off. Likewise, my blood pressure has remained relatively constant, the first number still too high but the second number in the 80-83 range.

a display case filled with lots of different types of donuts

Donuts on display in a bakery

Source: Instagram @omg.donuts.bakery

Indulging Responsibly: A Sweet Vacation Treat

One concession I made on my vacation,  however, was to break my ban on donuts, for just a day. In Charlotte, NC there is an appropriately named bakery called OMG Donuts, and I succumbed to the temptation of a single Boston Crème, because I knew that the regrets I would carry home with me would far outweigh the damage of a single magnificent confection.

Now back in Boston, I find it easier to resist donuts, ribs and fried everything knowing that I’m able to partake in moderation on those rare occasions when I find myself celebrating the joys of my life—my sons and my friends. By swearing off these foods in my “regular life,” I tell myself that I will have more years left to enjoy them when my working years are complete.

About the author:

Lewis Howe is the Community Partnerships Co-Ordinator for the Heart of a Giant Foundation. He welcomes your ideas, suggestions and expressions of support to help him in his fight against high blood pressure. You can reach him at [email protected].

Heart HealthVacation TipsWellnessBalanced DietModerationHealthy Lifestyleoldhgfposts
Back to Blog

News & Media

Sign-up to stay updated with the latest news, interviews, and media appearances of Somaneh “Bouba” Diemé.

Discover how Bouba makes waves in healthcare advocacy, patient support, and heart health education. Follow his journey as he shares insights, success stories, and ongoing efforts to drive positive change in healthcare systems worldwide.

Latest News

HGF-Lewis-Howe-September

VACATION-PROOFING YOUR HEART HEALTH: BALANCE AND MODERATION

August 09, 20233 min read

Heart Health Needn’t Take a Holiday Just Because You’re On One…

By Lewis C. Howe

If you’re like me, maintaining a regimen of a heart healthy diet, combined with regular exercise and stress reduction techniques, can become a matter of routine with practice and repetition.

But what about those times when we are living outside of our normal routines, and away from the daily monotony of work and workouts?  How do we avoid backsliding during those periods when it’s most tempting to slack off and cut loose?

I experienced this a couple of weeks ago when it was time for a long-awaited (and to my mind well-earned) vacation, nine days on the road visiting my son at college in a distant state, along with a side visit to my two best friends from my own college days (when dinosaurs roamed the earth).

In past years, this would have led to an uninterrupted barrage of late night diner food and deep fried memories. However, now that I live with my hypertension diagnosis, I have learned to follow the path of moderation, and to turn away from some of my more egregious dining habits.

Embracing Southern Delights in Moderation

That is not to say that I consumed nothing but kale and cauliflower during my time away from home. After all, this was a tour of the American South, replete with all the temptations nature and the fryolator can provide.

But I was able to temper my intemperance, while still enjoying my visit with my first born. When we went to the barbecue restaurant, for example, I ordered the catfish sandwich with lettuce and tomato, and passed on the ribs and fried chicken. Moreover, I perused the dessert menu, but elected ultimately not to partake.

Balancing Nostalgia and Health: My Dining Choices Revisited

Similarly, while reminiscing over old times with my college pals during a side trip to New Jersey, dinner was a corned beef sandwich on rye with pickles and slaw, rather than French fries with gravy like in my undergraduate years. By  limiting the “bad stuff” I was able to come home only 4 pounds heavier, and once I settled back in to “work mode” the following week the weight quickly came back off. Likewise, my blood pressure has remained relatively constant, the first number still too high but the second number in the 80-83 range.

a display case filled with lots of different types of donuts

Donuts on display in a bakery

Source: Instagram @omg.donuts.bakery

Indulging Responsibly: A Sweet Vacation Treat

One concession I made on my vacation,  however, was to break my ban on donuts, for just a day. In Charlotte, NC there is an appropriately named bakery called OMG Donuts, and I succumbed to the temptation of a single Boston Crème, because I knew that the regrets I would carry home with me would far outweigh the damage of a single magnificent confection.

Now back in Boston, I find it easier to resist donuts, ribs and fried everything knowing that I’m able to partake in moderation on those rare occasions when I find myself celebrating the joys of my life—my sons and my friends. By swearing off these foods in my “regular life,” I tell myself that I will have more years left to enjoy them when my working years are complete.

About the author:

Lewis Howe is the Community Partnerships Co-Ordinator for the Heart of a Giant Foundation. He welcomes your ideas, suggestions and expressions of support to help him in his fight against high blood pressure. You can reach him at [email protected].

Heart HealthVacation TipsWellnessBalanced DietModerationHealthy Lifestyleoldhgfposts
Back to Blog

Get In Touch

Milton St, Boston, MA, USA

The Heart of a Giant Foundation, Inc. is a 501(c)(3) nonprofit organization, EIN 84-2900386. Donations are tax-deductible.

Copyright 2018 - 2024. All rights reserved

Non-profit website by Up And Social