HGF
Welcome Message
On the behalf of our team and myself, welcome to our Website.
Heart of a Giant Foundation (HGF) was born from my personal journey and steadfast commitment to advocacy, resilience, and positive change. Throughout my journey to receiving a heart transplant, I gained a unique insight into the challenges and intricacies of our healthcare system. This life-altering experience ignited my passion to support others navigating similar paths, a journey I understand intimately.
Meet the Founder
Meet Somaneh 'Bouba'!
Business Professional, Entrepreneur, and Heart Health Advocate
Somaneh "Bouba" Diemé is an accomplished engineer, passionate entrepreneur, and dedicated community leader committed to empowering patients, caregivers, and the broader community in heart health. As a long-time heart patient turned community health innovator, Bouba leverages his unique experiences and skills to foster connection, learning, and growth among patients and healthcare professionals.
Personal Journey and Mission:
Bouba's journey began over a decade ago when he was diagnosed with a congenital heart condition, leading to a prolonged battle with chronic heart disease and, ultimately, a life-saving heart transplant. This personal experience ignited his commitment to raising awareness, providing support, and driving positive change for those affected by heart conditions, particularly in at-risk communities.
Heart of a Giant Foundation:
As the founder of the Heart of a Giant Foundation (HGF), Bouba has led the organization to achieve significant milestones in empowering individuals at high risk of heart conditions. The foundation's programs focus on education, support, and direct intervention, helping individuals achieve self-sufficiency and improved quality of life.
Global Impact and Leadership:
Bouba is renowned for his advocacy and leadership in healthcare innovation, focusing on preventing heart diseases and improving patient outcomes. His mission to enhance local and global health is fueled by his social connections, professional knowledge, and personal experience with heart failure. By volunteering within his community and bringing a unique perspective from living in diverse parts of the world, including areas with limited resources, Bouba continues to make significant strides in raising awareness and driving positive change.
Community and Beyond:
Based in Boston, MA, with his family, Bouba's impact extends beyond his local community to his home countries of Mali and Senegal. His dedication to fostering connections and improving healthcare initiatives has made him a sought-after speaker and collaborator.
Contact Information:
For speaking engagements, collaborations, or partnership opportunities, please feel free to reach out to Bouba. Together, we can make a difference in the lives of those affected by heart conditions. Contact details can be provided upon request.
Key Achievements and Focus Areas:
- Education: Providing comprehensive heart health education to at-risk communities.
- Support: Offering resources and support networks for patients and caregivers.
- Direct Intervention: Implementing programs that directly improve the quality of life for individuals with heart conditions.
- Advocacy: Raising awareness and driving changes to enhance heart health outcomes globally.
Bouba's unwavering commitment and innovative approach inspire and empower individuals and communities worldwide.
Bouba’s Blog
Welcome to My Blog!
Welcome to My Heart Health Journey Blog
Hello, I'm Somaneh "Bouba" Diemé, a passionate advocate for heart health and the founder of the Heart of a Giant Foundation. I'm thrilled to have you join me here as I share my personal journey with heart failure and life as a heart transplant recipient.
From 2012 to 2022, I survived congestive heart failure caused by a congenital heart defect, leading to open-heart surgery to implant an LVAD (Left Ventricular Assist Device) pump. After a six-year wait, I finally received a heart transplant in late 2022. This journey has not only shaped my life but also fueled my commitment to improving patient outcomes and empowering individuals to lead healthier lives.
Through this blog, I aim to:
-Share my unfiltered experiences as a heart failure survivor and heart transplant recipient.
-Provide insights into the patient's perspective, making it more relevant to the improvement of therapies and healthcare systems.
-Empower and educate others about heart health, advocacy, and the power of community support.
-Inspire hope and resilience in those facing similar challenges.
Join the Journey.I invite you to be part of this journey, engaging with my stories, learning from my experiences, and contributing to the conversation. Together, we can drive positive change in heart health outcomes and improve the lives of patients worldwide.
Thank you for your support and for being part of this community!
New to the blog? Start by exploring some of my key posts and don't forget to subscribe to stay updated on new content.
Disclaimer: The information shared on this blog is based on my personal experiences and is not intended to replace professional medical advice. Always consult with a healthcare provider for any medical issues.
Latest Blogs
PRELIMINARY IMPACT REPORT
To all our readers, supporters and friends
We are pleased to update you on the positive impact your support has helped us make through our Screening & Education Program. We are proud and grateful to report that over the past 11 months, the program has made significant strides in promoting community health and empowerment.
Here’s a snapshot of our accomplishments, challenges, and future plans.
Our Journey Highlights:
* Over the past 11 months, we’ve hosted 32 Blood Pressure Screening and Education events, including 2 webinars and 5 workshops.
* Your support has allowed us to connect with 376 individuals, conducting a total of 269 screenings.
* With their consent, we’ve tracked the measurements of 21 participants over multiple months. The positive outcomes are truly heartening, with 14 of the 21 individuals experiencing improvements in their blood pressure levels.
* We’ve expanded our outreach to cover 6 Boston neighborhoods: Brockton, Dorchester, East Boston, Jamaica Plain, Mattapan, and Roxbury.
The Impact We’ve Made:
* Through Remote Patient Monitoring (RPM), we’ve seen promising progress in the health indicators of 12 enrolled individuals, fostering ongoing communication with our Community Care Team.
* Our focus on Patient-Provider Communication Support has empowered individuals during health visits, addressing social issues and providing valuable tools for effective communication with medical teams.
* Community Empowerment sessions have equipped our communities with knowledge, resulting in increased confidence and preparedness, as evidenced by the positive trends in blood pressure data.
Learning and Growing:
Like any journey, we’ve faced challenges, particularly around capacity. Recognizing the need, we’re actively exploring the invaluable support of volunteers to enhance our planning, management, and outreach efforts in the coming year. Our future plans include investing in community outreach to boost event attendance. Collaborations with local churches, community organizations, and businesses will be key in making our events even more accessible.
Celebrating Positive Moments:
* The frequency of our events has increased, now happening weekly or bi-weekly in accessible areas.
* Synergies with partner locations have strengthened, enhancing collaboration and complementing existing social services.
* The positive interactions with communities have been encouraging, ranging from provider referrals to early detection of health emergencies.
Your support has been the driving force behind these achievements, and for that, we extend our deepest gratitude. We’re excited about the positive momentum and are dedicated to expanding our impact in the coming year.
Thank you for being an integral part of this journey. Together, we’re set to achieve even greater milestones in community heart health.
News & Media
Sign-up to stay updated with the latest news, interviews, and media appearances of Somaneh “Bouba” Diemé.
Discover how Bouba makes waves in healthcare advocacy, patient support, and heart health education. Follow his journey as he shares insights, success stories, and ongoing efforts to drive positive change in healthcare systems worldwide.
Latest News
PRELIMINARY IMPACT REPORT
To all our readers, supporters and friends
We are pleased to update you on the positive impact your support has helped us make through our Screening & Education Program. We are proud and grateful to report that over the past 11 months, the program has made significant strides in promoting community health and empowerment.
Here’s a snapshot of our accomplishments, challenges, and future plans.
Our Journey Highlights:
* Over the past 11 months, we’ve hosted 32 Blood Pressure Screening and Education events, including 2 webinars and 5 workshops.
* Your support has allowed us to connect with 376 individuals, conducting a total of 269 screenings.
* With their consent, we’ve tracked the measurements of 21 participants over multiple months. The positive outcomes are truly heartening, with 14 of the 21 individuals experiencing improvements in their blood pressure levels.
* We’ve expanded our outreach to cover 6 Boston neighborhoods: Brockton, Dorchester, East Boston, Jamaica Plain, Mattapan, and Roxbury.
The Impact We’ve Made:
* Through Remote Patient Monitoring (RPM), we’ve seen promising progress in the health indicators of 12 enrolled individuals, fostering ongoing communication with our Community Care Team.
* Our focus on Patient-Provider Communication Support has empowered individuals during health visits, addressing social issues and providing valuable tools for effective communication with medical teams.
* Community Empowerment sessions have equipped our communities with knowledge, resulting in increased confidence and preparedness, as evidenced by the positive trends in blood pressure data.
Learning and Growing:
Like any journey, we’ve faced challenges, particularly around capacity. Recognizing the need, we’re actively exploring the invaluable support of volunteers to enhance our planning, management, and outreach efforts in the coming year. Our future plans include investing in community outreach to boost event attendance. Collaborations with local churches, community organizations, and businesses will be key in making our events even more accessible.
Celebrating Positive Moments:
* The frequency of our events has increased, now happening weekly or bi-weekly in accessible areas.
* Synergies with partner locations have strengthened, enhancing collaboration and complementing existing social services.
* The positive interactions with communities have been encouraging, ranging from provider referrals to early detection of health emergencies.
Your support has been the driving force behind these achievements, and for that, we extend our deepest gratitude. We’re excited about the positive momentum and are dedicated to expanding our impact in the coming year.
Thank you for being an integral part of this journey. Together, we’re set to achieve even greater milestones in community heart health.
The Heart of a Giant Foundation, Inc. is a 501(c)(3) nonprofit organization, EIN 84-2900386. Donations are tax-deductible.
