In 2012, Bouba Diemé was 26 years old, living in South Africa, newly in love, full of plans. Then came the chest pain. The flu-like symptoms that would not leave. The diagnosis: left ventricular non-compaction cardiomyopathy, a rare congenital heart defect. His heart was too big. It was working too hard. It would only get worse.
Medication helped for a while. Then it didn’t.
In 2017, surgeons implanted an LVAD, a mechanical heart pump, into his chest. For nearly six years, Bouba plugged it into the wall every night to charge. He lived with it every hour of every day. He moved to Boston. He got married. He became a father. He built a life around a machine keeping him alive while he waited for a heart that fit his frame. At 6′8″, the wait was long.
On a Friday afternoon in October 2022, the call came. He received his transplant at Brigham and Women’s Hospital. One of the photographs taken afterward shows one of his sons listening to his new heart through a stethoscope.
“I think our journey to the transplant is really what defined our next step.”
Bouba Diemé
That next step was Heart of a Giant Foundation.